Sunday, 20 April 2014

Psoriasis Shout Out


I’m off on my travels again … but this time I’m hoping that some of you might join me!  If you follow me on Twitter, you will know that there is a huge event (we’re talking a ginormous, never-seen-before event) taking place in Manchester from Monday April 28th to Friday May 2nd.  It is the Psoriasis Shout Out comprising of a series of events to raise awareness and educate the public.
 
 

OK, so Manchester is not quite as glamorous as Milan, but I have a strong suspicion that it might well be lots more fun!  There is a full schedule of events planned (click here for more information) and I’m involved in two.  The first is on Wednesday 30th April at 2.30pm, where I will be giving a short five minute talk at Salford Royal NHS Foundation Trust.   This talk (which I have yet to write *gazes out window and hopes for inspiration*) will centre on my experience of psoriasis and why I felt compelled to start this blog.  The other talks will be given by Professor Chris Griffiths, who I’m reliably informed is one of the world’s Top Three psoriasis experts, and finally a talk by my pal, actor and comedian, Toby Hadoke, who will chronicle his experience with this disease (between you and me, the event is worth attending just to hear him speak!)  After these brief talks, the floor will be open for a Q&A session, so this is your chance to ask the questions you’ve always wanted answered.  And if you have a question for me, I promise to answer honestly!  If you would like to attend, please register your interest at info@psoriasisshoutout.co.uk

But then … and this is where it gets really interesting … on Friday May 2nd , there will be not just one, but two fashion shows held in the Trafford Centre in Manchester (1.30pm and 5.30pm.)  These are not just any common or garden fashion shows however.  These are fashion shows which are specifically styled for people who suffer from psoriasis and not just that! (This post is awash with exclamation marks, have you noticed?) This fashion show will be hosted by myself (what on earth will I wear?) and the models will be fellow sufferers.  How completely fabulous is that?  Regular, normal people like you and I, will be braving the catwalk in pursuit of raising awareness of psoriasis.  I am blown away by their generosity and courage.  The fashion will be styled by me (gnaws fingers anxiously!) with the help of each store and I would love if you could come along and support us.  We are all united in one wish … to bring psoriasis centre stage.  As I have approximately one day in which to match outfits to models (Dear God, what have I let myself in for?!) this probably won’t be the most professional fashion show you’ve ever seen.  What I can guarantee however, is that there will be genuine fun, laughter, helpful tips, loads of advice and a chance to see how it is absolutely possible to (here I go again!) look fabulous on even your flakiest days!

Other events throughout the week include free sessions of mindfulness and a poetry reading where psoriasis patients express how they feel.  There are flash mobs (watch out Manchester!), professional therapists and a chance to meet fellow sufferers.  In short, it’s a chance for us, Psoriasis Patients, to literally Shout Out about our condition; to make others aware; to share our experiences; and hopefully have some fun along the way.  I really hope you can make it and if you can, please, please do say hello.  I’d love to meet you!
 
 

18 comments:

  1. I am so so so proud of you! It sounds absolutely amazing and I wish I could be with you - you will be fantastic. Best of luck, can't wait to hear all about it! Kat xxx

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    1. Thanks Kat. I'm sure it will be great ... once I've got over the challenge of styling the show eeek!!

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  2. I would love to be there to support you Helen, it sounds like there are some terrific events lined up! Wishing you all the very best of luck with your speech! Can't wait to see what you do wear.....I know you will be an inspiration to fellow psoriasis sufferers. Hope you have a great time xx

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    1. Thanks Michelle. I've a feeling that the white crepe blazer from Mango will make an appearance ... and I may just have invested in a sculptured top from Whistles as well!!! Will try to get some photos on the day!

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  3. It will be fabulous Helen....great opportunity and wonderful cause! I am sure you will have it all styled to perfection:) Hope you had a good Easter:)
    ~Anne

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    1. Thanks Anne. I'm crossing my fingers that it will all go according to plan!

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  4. Whoop whoop. Can't wait to see you. You will be fantastic!!! xxx

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    1. Hurray! You'll be around ... I could well be pleading with you to help me out!! You have been warned!

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  5. Oh wow Helen how amazing is this? You have done so well in spreading the word and talking about fashion and the psoriasis sufferer, so so proud of you. Shame I am so far down south I would love to support you in all of this xx

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  6. You have been such a Maverick in bringing this very common condition to the masses! I am sure you will be a star on the day, and will put together some amazing outfits! xx

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    1. What a lovey thing to say, thank you! Hope you're right about the outfits .. am already scouring Pinterest for inspiration!

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  7. I'm going to try my best to get there but no guarantees unfortunately.

    But I'm so pleased for you and how far you've come on this journey. You'll be fab and I think you'll love every minute of it! All the best for the events you've got lined up!

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    1. Thanks Sue! Honestly, you're so good to suggest coming, but I really don't expect you to. It's too far (she says confidently, despite not having a clue of the UK geography!!) and you'll be busy with school runs etc. But thank you for thinking of me x

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  9. Wish I could be there but I've got yet another week of dermatology appointments for ointment and light treatment (how ironic!) In desperate need of inspiration for a wedding outfit that covers my scaly and stained arms and legs!

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  10. I know that you will do amazing!! Wishing you love and support from Toronto!

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  11. So pleased to have you involved Helen. Very excited about what should be an amazing week. Can't wait to see our lot strutting their stuff on a catwalk!

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