Today I am asking you all to use your voice and help us in our efforts to raise awareness of psoriasis. So many of you have talked about the stigma that surrounds this disease and the embarrassment that you have felt because others have not understood what psoriasis is, or indeed have believed it to be contagious.
But today, I bring you the opportunity to join with us in our effort to combat this lack of awareness. I’m not just asking for the help of psoriasis sufferers. I am also asking all of you who know someone with psoriasis, be it a friend, sibling, spouse, child, work colleague, neighbour or inlaw! This is your chance to show your support and be heard.
World Psoriasis Day occurs each year on October 29th and this year a Thunderclap has been organised to take place on that day. What this essentially means, is that you sign up via your social media platform such as Facebook or Twitter. When you sign up, everyone who is your friend or follower will receive the same message at the same time on the same date. Think of it as a Flash Mob for social media if you will! And at the exact same time the friends and followers of everyone else who signed up, will receive the message too. A thunderclap across social media to raise awareness of psoriasis. So simple, yet so effective!
To get involved, please click on this link
... this is the message that you will be sending;
“This #WorldPsoriasisDay #ImPsOReady to raise my voice in support of the 125M people worldwide with #psoriasis”
But that’s not all …
A comprehensive study on the impact of psoriasis on patients is currently being conducted in 37 countries and Ireland was chosen to be part of this. If you live in Ireland, I would love if you could take ten minutes to fill out this questionnaire. The great thing is that each study has been modified according to each country so that the national results will be available for use in research, lobbying etc. Please do use this opportunity to have your say!
And finally, a bit of humour to end this post. One of my favourite patient advocates, Toby Hadoke, recently recorded this video and it is guaranteed to make you smile as well as feel so much more positive about psoriasis treatments.
Next time, as previously promised, it will be back to fashion and the coatigan / knitted coat!